A
North Carolina teen born with a rare condition that left her without a
nose or eyes is preparing for her final operation which will give her a
real nose.
Cassidy
Hooper, 16, will undergo three surgeries at Levine Children's Hospital
in Charlotte over the course of two weeks that will create a nose from
cartilage and bone taken from her skull.
And
the good news has left the energetic teen ecstatic because for the
first time she will be able to smell and breathe through her own nose.
When she was born, her condition left doctors baffled, especially since had no other medical problems and leads a healthy life.
'Her heart and brain are normal,' said her mother, kindergarten teacher, Susan Hooper to ABC News.
'Nothing else is going on with her.'
The
inspirational teenager has been going through skin graft surgeries to
adapt her face since she was 11 years old and is pleased to be entering
the final straight.
'I'll have a real nose like everyone else's,' said Cassidy.
Her surgeon, Dr. David Matthews has worked for the past five years
expanding her face to create a bony opening, that has now developed into
a bony opening, that is now waiting for the cartilage graph to be
placed over.
In
the past, Cassidy used prosthetic eyes, but since they cost $5,000
each, the Hooper's could not afford to keep replacing them as their
daughter grew.
'Insurance
didn't pay one cent,' said Susan, 42. 'We had already started the
process to do her nose, moving her eyes closer together and having her
skull reshaped. We were not going to pay for it then have to pay again.'
Experts who spoke to ABC News explained how the surgery to replace Cassidy's nose will be completed.
'A
lot of people have noses they lost to trauma and cancer and breathe
fine and have a sense of smell. The nose is something we expect to see
in its conventional place and it's good to put glasses on, but it's not
100 percent necessary.'
'The
soft tissues that make up the inside and the outside skin and mucus
membrane don't have a lot of strength to stick out of the face like the
nose does. You can't just slap some skin up there and make it look like a
nose.'
Cassidy's
doctors have taken a layered approach - placing the inside membrane
first, then using cartilage and bone from her skull create a nose
structure and then cover it with skin.
The hardest part for Cassidy has been overcoming the social difficulties.
She
has been attending Governor Morehead School, a specialist school for
the blind since the fifth grade and deals with taunts from children
well.
'Honestly, there's been a bit of teasing, but not more than any other child on a regular day,' said her mother.
Active and confident, Cassidy is involved with track and field and has even taken up the winter sport of curling.
She dreams of being a radio broadcaster and has recently appeared on the airwaves at her local radio station.
'It was the first time and I actually did my own radio broadcast for an hour -- I took over,' said Cassidy.
'I have been listening to radio since I was younger, and I like how they do it. I am interested in jingles.'
Source: Dailymail
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